I followed Bethany on Instagram because of her beautifully drawn, professional-looking comics that reminded me of my favorite graphic novels, only they were about Lyme disease! I love Bethany’s style, humor, and the painfully accurate way she reflects the patient experience. Continue reading “Spoonie Artist Guest Post: Bethany@lymelifecomics”
I first learned about Yulia through her hilarious ME advocacy videos on her channel, @FunWithCFS. Yulia was a Ph.D student when she got sick and she is one brilliant, multitalented spoonie! This is a tiny bit longer than my other guest posts, but every word is worth the time. Please read her painfully relatable, funny, beautifully written memoir excerpt and be sure to check out her videos in the middle of the post.
Continue reading “Spoonie Guest Artist:Yulia (@FunWithCFS on YouTube)”
I first found Jennifer because we were in the same Facebook group and she posted an incredible painting called “The Scream” (below). It really sums up the experience of being a Lyme patient. Here is her story and some of her amazing awareness art. Continue reading “Spoonie Guest Artist: Jennifer Bialk Scott”
Do you ever feel that everyone who has a chronic invisible illness like Lyme, ME, fibromyalgia, or MCS deserves an award for everything we deal with? Me too! Continue reading “The Spoonie Awards (Because We All Deserve a Medal): Part One”
Hello Spoonies and Happy Valentine’s Day… Continue reading “Valentines for Spoonies: Part Two”
For those of you who have to see your more insensitive/clueless family members during the holidays, I created this new-and-improved family unit consisting of only people who say the right things… Continue reading “Spoonie Rent-A-Family (TM) for the Holidays”
For a long time, I’ve been noticing that there are many outlets for writers with chronic illness but comparatively few for artists with chronic illness. I decided to create these “Spoonie Guest Artist” posts, featuring some of the super-talented visual and multimedia artists I’ve met since I started blogging. I found Alexandra on Instagram (she’s @yourachingart_m.e). I immediately started following her because her work is creative, relatable, funny, lovely, and comforting. She’s also an excellent writer; I admit I teared up reading parts of this. Check out her story and artwork. Continue reading “Spoonie Guest Artist: Alexandra Baker (@yourachingart_m.e)”
Yes, it’s that time of year again. Continue reading “Valentines for Spoonies”
Well, the holidays are over, and you may have had to encounter your relatives during some sort of festive celebration thingie. Continue reading “Difficult Relatives of Spoonies”
So you’ve celebrated Christmas and/or Hanukkah and Kwanzaa, but what about the little-known festival of Catmas? Your cat definitely thinks it should be an official holiday.
Remember when our biggest problems were doctors not taking us seriously and people’s lack of understanding about our health issues? Are you nostalgic for those days? Me too! Continue reading “How to #Resist Without Using All Your Spoons”
Christmas is great, Hanukkah is great, but I really think Festivus has excellent potential as a holiday for the chronically ill. Hear me out. Continue reading “Festivus: A Holiday for Spoonies?”