This is for my fellow food allergy sufferers who have Difficult Relatives: Continue reading “Difficult Relatives of Spoonies, Part Three”
Welcome to my second Spoonie Guest Artist post. I started following Nicole on Instagram because I fell in love with her gloriously sarcastic and painfully funny collage art. Her work is one of the reasons I started this series. Continue reading “Spoonie Guest Artist: Nicole a.k.a. @artful_agony”
Hello Spoonies and Happy Valentine’s Day… Continue reading “Valentines for Spoonies: Part Two”
For those of you who have to see your more insensitive/clueless family members during the holidays, I created this new-and-improved family unit consisting of only people who say the right things… Continue reading “Spoonie Rent-A-Family (TM) for the Holidays”
Since Lyme awareness month is about to end, I thought I would tell a story about what can happen when there’s no Lyme awareness. Continue reading “Misdiagnosed Despite a CDC-Positive Test: My Lyme Disease Story”
Main Character, a woman with Lyme, fibromyalgia, allergies, thyroid disease, and a messed-up spine, is trying to get a doctor to authorize her brand-name Neurontin (a painkiller that works on nerve pain). She gets weird rashes and chills from using gabapentin, the generic version of the medicine. She got a threatening letter from her insurance carrier, saying that after April 1 they weren’t going to pay for the brand-name version without a doctor’s authorization. Continue reading “Two Days in Insurance Hell: A Play in Hopefully Only One Act”
What is medical limbo? It’s the time when I’m waiting for test results, waiting to find out the meaning of a new symptom; waiting to see if a new medication makes me feel better; waiting to see if that same new medication gives me double vision, an odd rash, or another strange side effect; waiting for a doctor to call me back; waiting for someone to come along and answer a question I posted in a medical forum; waiting to find out if my insurance will approve a treatment. Chronic illness involves a lot of waiting. Continue reading “This Week in Medical Limbo”
I’ve been trying to meditate for years.
I had read about the benefits of meditation for coping with Lyme disease, chronic pain, thyroid disease, allergies, anxiety, and almost every condition I have, but I just couldn’t focus on my breath and keep my mind from racing. Continue reading “Meditation Techniques for the Meditation-Challenged, Part One”
Well, I’ve been blogging for a month, and I finally learned how to check my stats. The most popular search was an image search for “Fibro Monster,” the category I use to write about my fibromyalgia. I started to imagine the way a Fibro Monster might look. Continue reading “The Fibro Monster”
“Inside every older person is a younger person, wondering what the hell happened.”
— Cora Harvey Armstrong Continue reading “Happy Birthday to Me”
1. You LOOK so healthy.
2. Have you tried (name of very basic, obvious remedy, like ibuprofen)?
3. Are you SURE you’re sick?
4. You mean you really can’t do that tiny, tiny, little motion? Just doing that little thing causes you pain? Aren’t you being dramatic? Continue reading “Things Not to Say to People With Chronic Illnesses”