… that ticks can read?
Continue reading “Do People Who Say “There’s No Lyme in This State” Think…”
Tag: Fibromyalgia
Things Not to Say to People With Invisible Illnesses, Part Two
“Can’t you just have a little bite of [thing I can’t have a little bite of]?”
“Gluten-free is the trendy thing nowadays, I guess.”
“Will just one piece kill you?” (I don’t know — do you want to come to the emergency room with me after I eat it?)
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Valentines for Spoonies, Part Three
When I was young, I hated Valentine’s Day. I was never a hearts-and-flowers person. I was a Depressed-Cynical-Black-Leather-Jacket person. Then I had a boyfriend who hated Valentine’s Day even more than I did, and suddenly I wanted the cheesiest cards and the tackiest flowers. It’s weird how that works.
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Things Not to Say To People With Invisible Illnesses, Part One
The infamous ”but you don’t look sick” is usually at the top of the list of things not to say to people with invisible chronic illnesses.
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Some Say That Chronic Illness Is a Gift: A Cartoon with Two Endings
In my vague and fuzzy brain-fogged memory, I remember reading an interview in which someone said her chronic illness was a gift. Continue reading “Some Say That Chronic Illness Is a Gift: A Cartoon with Two Endings”
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Difficult Relatives of Spoonies, Part Three
This is for my fellow food allergy sufferers who have Difficult Relatives: Continue reading “Difficult Relatives of Spoonies, Part Three”
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Spoonie Guest Artist: Nicole a.k.a. @artful_agony
Welcome to my second Spoonie Guest Artist post. I started following Nicole on Instagram because I fell in love with her gloriously sarcastic and painfully funny collage art. Her work is one of the reasons I started this series. Continue reading “Spoonie Guest Artist: Nicole a.k.a. @artful_agony”
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Valentines for Spoonies: Part Two
Hello Spoonies and Happy Valentine’s Day… Continue reading “Valentines for Spoonies: Part Two”
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Spoonie Rent-A-Family (TM) for the Holidays
For those of you who have to see your more insensitive/clueless family members during the holidays, I created this new-and-improved family unit consisting of only people who say the right things… Continue reading “Spoonie Rent-A-Family (TM) for the Holidays”
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Misdiagnosed Despite a CDC-Positive Test: My Lyme Disease Story
Since Lyme awareness month is about to end, I thought I would tell a story about what can happen when there’s no Lyme awareness. Continue reading “Misdiagnosed Despite a CDC-Positive Test: My Lyme Disease Story”
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Two Days in Insurance Hell: A Play in Hopefully Only One Act
Main Character, a woman with Lyme, fibromyalgia, allergies, thyroid disease, and a messed-up spine, is trying to get a doctor to authorize her brand-name Neurontin (a painkiller that works on nerve pain). She gets weird rashes and chills from using gabapentin, the generic version of the medicine. She got a threatening letter from her insurance carrier, saying that after April 1 they weren’t going to pay for the brand-name version without a doctor’s authorization. Continue reading “Two Days in Insurance Hell: A Play in Hopefully Only One Act”
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This Week in Medical Limbo
What is medical limbo? It’s the time when I’m waiting for test results, waiting to find out the meaning of a new symptom; waiting to see if a new medication makes me feel better; waiting to see if that same new medication gives me double vision, an odd rash, or another strange side effect; waiting for a doctor to call me back; waiting for someone to come along and answer a question I posted in a medical forum; waiting to find out if my insurance will approve a treatment. Chronic illness involves a lot of waiting. Continue reading “This Week in Medical Limbo”
Miss Diagnoses 