I usually think about what I’ve lost from being chronically ill, which is pretty much everything. But it turns out I have also acquired many odd new talents.
Here are a few, in honor of Lyme Awareness Month, MCS Awareness Month, Allergy Awareness Month, ME Awareness Month, Celiac Disease Awareness Month, and other spoonie-type awareness months that unfortunately all take place in May (a bit exhausting, maybe?).
But the most important skill I gained was dealing with Lyme-related “alternative facts.” Lymies have been hearing alternative facts about our disease from the CDC and the Infectious Disease Society of America (IDSA) since the late 20th century. (Update 2018: Yes, the alternative facts thing is from last year, but Lyme patients are still being gaslighted so it still applies. And yes, that is Kellyanne Conway as a spirochete.)
Avoid Lyme Alternative Facts!
A few months back I participated in a contest to design Lyme Warrior string dolls. The dolls are made by Kamibashi Asian Art and part of the purchase price goes to LymeCares, a great charity that raises Lyme awareness among socially responsible businesses. LymeCares uses products these businesses donate to create lovely, therapeutic gift packages for Lyme patients in need.
I just got the female doll–it is very cute and tiny!
You can see the male doll (it has a tiny green hat!) and the dolls they have for other diseases here.
Also, the five cartoons in this post have been made into a video, originally created as a Facebook slideshow by my awesome friend Lily from The Sleepy Girl Guide to Social Security Disability. Please check out her fantastic blog for super-detailed, helpful information about applying for disability, getting Medicaid, getting homecare, getting accessible transportation, and everything else a spoonie needs to know.
I hope you enjoy the goofy music! Wishing everyone a low-symptoms day and a good Awareness Month! 💚❤💛💙